Patient Data-Sharing for AI: Ethical Challenges, Catholic Solutions. Journal Article

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Authors: Baric-Parker, J; Anderson, EE
Article Title: Patient Data-Sharing for AI: Ethical Challenges, Catholic Solutions.
Abstract: Recent news of Catholic and secular healthcare systems sharing electronic health record (EHR) data with technology companies for the purposes of developing artificial intelligence (AI) applications has drawn attention to the ethical and social challenges of such collaborations, including threats to patient privacy and confidentiality, undermining of patient consent, and lack of corporate transparency. Although the United States Catholic Conference of Bishops' () address collaborations between US Catholic healthcare providers and other entities, the do not adequately address the novel concerns seen in EHR data-sharing for AI development. Neither does the Health Insurance Portability and Accountability Act (HIPAA) privacy rule. This article describes ethical and social problems observed in recent patient data-sharing collaborations with AI companies and analyzes them in light of the guiding principles of the as well as the 2020 () document recently released by the Vatican. While both the and guiding principles can inform future collaborations, we suggest that the next revision of the should consider addressing data-sharing and AI more directly. Summary: Electronic health record data-sharing with artificial intelligence developers presents unique ethical and social challenges that can be addressed with updated United States Catholic Conference of Bishops' and guidance from the Vatican's 2020 .
Journal Title: The Linacre quarterly
Publisher: Unknown  
Date Published: 2020